Join the Battle Against Aggressive Fibromatosis

Dear friends,

I urgently need your support. Please take a moment to read this – your attention means the world to me right now.

I have been battling aggressive desmoid fibromatosis for the past four years.

Unfortunately, standard treatment protocols are no longer effective. My only remaining option is targeted chemotherapy with Ogsiveo (nirogacestat). This medication was approved in the United States two years ago and has shown promising clinical results — a 74% response rate.

This gives me a real chance to stop the aggressive tumor growth and finally achieve remission.




Organizer Artur Alpashev

Orlando, FL

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