In need of humanitarian treatment for the condition short bowel syndrome for my daughter. It requires to be hooked up to IVs for 12-16 hours a day as well as specialized formula 4-6 times a day through a feeding tube in her stomach. My son required this treatment for 3 years in order to stay alive. The hope is that over time, as the the small intestine grows longer and with the special formula, the cilia that absorb the nutrients in the intestine will also grow in size. Infections do occur and my son was back in the intensive care unit for 4-6 week stays more than a few times. Medicine and the equipment have advanced since then and her outcome will be for a long life if she can remain here until hero small intestine can support her nutritionally without the IVs and feeding tube.
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