Hello friends!My name is Rosemary Kiania from Kenya and my Nephew
Baby Jason was born with Spinal Muscular Atrophy (SMA), a rare genetic condition that has affected his ability to move, eat, or even breathe on his own. He has been in ICU since October last year.
✨But there’s hope — a groundbreaking gene therapy treatment that can change his life. The only challenge is the cost of the drug, hospitalization and associated tests : Ksh 25 million (193’125 USD). The therapy must be administered before he turns 2 years It’s a huge mountain, but we believe in miracles, and in the power of people coming together.
With your help, we can give Jason a fighting chance. And that is why we have formed this group, to raise the funds needed for his treatment and to request for your support in achieving this.
