Support Saylor’s Journey with Trisomy 9

Saylor Kate was born on June 3rd weighing 5.5lbs she was thought to have a heart condition and taken to nicu where they determined she in fact does not have a heart defect. However during her observation in nicu she had a few symptoms the Dr’s were concerned with and monitoring. She was aspirating during bottle feeds and losing weigh she got down to 5.1lbs before putting a feeding tube in her nose she has now been eating much better and has gained up to 5.8lbs today. She was diagnosed yesterday with mosaic trisomy 9 a rare genetic disorder and not sure exactly what that will entail. She will see a geneticist to determine her level of severity. She will need to be going to lots of Dr’s specialist and geneticist back and forth to Atlanta. She will have a long road ahead and with two loving parents she will get to where she needs to be. Any help and prayers is greatly appreciated as the trips back and forth will be costly anything at all is accepted. We still don’t have an exact date for when she will get to come home from the nicu were waiting on a few things one being insurance to get her the equipment she will need to take home with her and another will be her parents learning to put in her feeding tube that she will be sent home with. Her dad has currently taken off work to be with his daughter and him and her mother are going back and forth to the hospital multiple times a day for visitation and feedings. All donations will go towards transportation, gas, food, parking, and Saylors needs. If you feel lead to help please reach out and keep this family in your prayers! Saylor is very loved already and she is perfect just the way God made her ❤️