Support Troy’s ALS Battle & Advocacy

My husband Troy Fields and I have been together for 30 years, and he has always been my rock and best friend. Seven years ago, Troy was diagnosed with ALS, and since then, our lives have changed in ways we never could have imagined. Despite being completely paralyzed and losing his ability to speak, Troy continues to work with legislative teams, advocating for ALS research and fighting to make life better for others facing this diagnosis. He uses a headset and microphone, and soon a Tobii device, to communicate and keep pushing for change, even as his own voice fades.

Caring for Troy is a full-time job, and the financial strain has become overwhelming. Our bills are much higher than what we receive from long-term disability, and I no longer have any income. We’ve had to modify our mortgage to keep our home, and we’re behind on payments for our special mobility van, which is in desperate need of repairs. Everyday expenses like food have become a struggle, and we’re facing pressure from our HOA to paint our house. On top of that, we have unpaid credit cards, medical bills from Troy’s pneumonia and feeding tube surgery, and ongoing costs for his clinic visits, prescriptions, and equipment like a new shower chair. Every night, Troy relies on his Tobii to wake me so I can help him move and relieve his pain from cramping.

ALS has taken so much from us, but Troy’s determination to help others remains unshaken. He knows a cure may not come in time for him, but he keeps fighting for those who will face this disease in the future. Your support will help us cover essential medical and living expenses, and allow Troy to continue his advocacy work for as long as possible. We are deeply grateful for any help you can give, and for standing with us in this fight.




Organizer Terry Fields

Tampa, FL

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